Since he was two Toby has been obsessed with buses and one of his favourite things to do is to spend the day riding around Northamptonshire, especially on routes and buses he has never been on before.
Toby was born with Hirschsprung’s Disease, a life threatening congenital condition where the nerve supply of an area of the bowel has not developed properly. This causes a blockage of the large intestine due to improper muscle movement in the bowel. Usually discovered either within the first few days or weeks of birth, the condition is rare and only occurs in around 1 in 5,000 children.
For children like Toby, it can, at times, be very isolating to have Hirschsprung’s Disease. Spending lengthy amounts of time in hospital, unable to attend school and when they are at school having special needs and coping with the finger pointing – the stigma of being different. He had his first major surgery when he was just 6 weeks old and since then he has been in and out of hospital frequently. Toby currently has an ileostomy although with further surgery they may be reserved in the future.
FCL Organisation are supporting Champs Appeal, a charity run by a small group of volunteers. They fundraise to organise events for families living with Hirschsprung’s Disease and also to donate to research carried out at Liverpool University.
Stagecoach have kindly offered to provide Toby with a bus pass for the next 12 months and Dave Heptinstall, Engineering Director of Stagecoach Midlands will be presenting it to him on FCL’s stand #H10 Thursday 1st October at 11.30, at the Coach and Bus Live taking place at the NEC.